Rob's eyes, that is. He has glaucoma, and was diagnosed very early in life. His pressure test was today and I am always a little crazy inside waiting to hear the results. Glaucoma is not curable, it is something you "manage." And management can have varying rates of success. Part of the success depends on early identification of the disease. We have that. Part of it depends on consistantly taking the meds. We have that covered too.
But there are variables we can't control that will impact his ocular pressure. Growth spurts, for instance can have an impact. There are other things too I suspect that doctors will find out in years to come. All I know is that I want my beautiful son with soulful brown eyes to be able to see the world.
Today, the pressure was slightly higher in one eye, though still within the parameters for normal. However for the first time ever, he could not see a light in one of the vision tests that they do. It is not anything dramatic as yet, but it is that little jab from the disease letting it know we need to stay vigilient and it is not giving up.
It is also a reminder to me how frustrating it is that we have so little medical info for our children. I know through conversation with Rob's extended family, that it is likely that his father has glaucoma. I don't know when it was diagnosed. I don't know how well it responded to treatment, or if any issues related to it have occured. I tried to get that information and was not able to. I wish I had those facts for my son. It might help the doctors. It might make Rob feel better about things. I have read on numerous adoption blogs how much it bothers many adult adoptees to write down that they have no medical history when they see a doctor. And I get that. But if you are the worry wort adoptive mom it isn't a whole lot of chuckles either.
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